FSR treatment for Acoustic Neuroma at SIUH and JHU
an informal survery by Eddie Beh
I am a newly diagnosed AN patient. Recently, I have sent over 40 emails, including those who went for FSR and those who are still watching and waiting, like myself. The final breakdown of responses as at January 28, 2000 are as follows :
Other Establishments (FSR)
Watch and Wait
|Total :||32 replies|
I have read and analysed all the responses. I would like to express my gratitude to those who replied, as the all the information and advises are invaluable.
Below is my general summary and conclusions on FSR treatment for Acoustic Neuroma at SIUH and JHU. I will only comment on FSR at SIUH and JHU, as I feel that these two medical establishments are the best there is in treating AN and they have the most experience and expertise in this particular field. I hope that it will be useful for those who are seeking treatment for their Acoustic Neuroma.
II. RESULTS OF FSR
As Acoustic Neuroma affects mainly the hearing nerves, one of the main concerns is preservation of hearing after FSR. The hearing results following FSR:
|Better||Same||Worse||Uncertain / Don't know||Total|
Please note that the results are only from the responses I received, and do not represent the general outcome of FSR as claimed by SIUH and JHU. For example, SIUH claimed that hearing in 15% improved after treatment, 70% same and 15% deteriorated.
Here is a summary of patient reports:
III. SIUH vs. JHU
I understand that those who are still in the watch and wait group like myself, are facing rather difficult choices: should I wait and watch? if I decide to go for FSR, where? One SIUH patient quoted Dr. Lederman as saying that condition before FSR could be irreversible after treatment ( i.e.: would anyone want to wait until they suffer additional side effects?). Common sense tells us that the smaller the tumour, the less radiation would be needed, therefore less complications; but with rapid advances in medical technology, should one wait for better alternative solutions for Acoustic Neuroma? Please note that even FSR is relatively new (all the cases I reviewed received treatment within the last 3 years) [Editor: my FSR case was reviewed, and is over 3 years ago; however, it is not at JHU/SIUH] and there is currently not much data to evaluate its long term effects.
I hope that my research has been helpful in some ways for those who are still watching and waiting. I would like to express my sincere thanks again to everyone who has replied. Do keep in touch. Thank you and god bless.
Eddie Beh <rnrhorse AT tm.net.my>
Last Edited: Wednesday, October 30, 2002