HEAD FOR HEALTH - Acoustic Neuroma Patient Archive

HEAD FOR HEALTH:
A ONE DAY ACOUSTIC NEUROMA CONFERENCE
for patients, family members and health professionals

Saturday, August 14, 1999
7:30 AM - 5PM
Hofstra University, Hempstead, NY

presented by ANA/NY and SAF (Survivors Art Foundation)

1. CONFERENCE OVERVIEW AND OBJECTIVES

Acoustic neuroma affects one person in one hundred thousand. This is a rare disease, a brain tumor on the vestibular nerve. Neurofibromatosis II, characterized by bilateral acoustic neuromas, is even more rare. When you receive the diagnosis of brain tumor, it can feel like the end of your life. Facing fear, learning medical terms, researching treatments, and making hard decisions form the next path. Sometimes, after surgery or radiation, painful problems persist and the difficulties are not over. Even after full recovery, we may be grateful, but yearn for a deeper sense of health and wholeness.

In our hunger to understand what is happening to us, at first it may seem that no one has heard of acoustic neuroma. Later we may find conflicting testimonies on the Internet. How do we weigh and judge the information we find? This conference will offer you an opportunity to ask your burning questions and voice your concerns to physicians and health care specialists who have extensive experience working with acoustic neuroma patients.

Dedicated to frank dialogue and open communication, the conference will host a general question session with AN surgeons and four breakout sessions, with a choice of several workshops each session. We hope you will join us.

There is a great wisdom and power present when human beings with similar problems come together to listen and comfort and share information. When we have the information we need, and when we feel we are understood, we can find courage and even joy in the midst of difficult times.

2. WHO SHOULD ATTEND

This conference has been specifically designed for:

People diagnosed with Acoustic Neuroma, NFII, or other benign brain tumors
Family Members & Friends
Health Care Professionals
Educators
Social Service Professionals

3. PRELIMINARY PROGRAM

7:30 - 8:45 AM Registration and Breakfast

8:45 - 9:45 AM Concurrent Workshops, session I

1. The History of AN Surgery
Samuel Selesnick, MD
Vice Chairman, Dept. of Otorhinolaryngology,
Presbyterian Hospital/Cornell University, New York, NY

2. Know Your Rights: The Americans with Disabilities Act
Philip Siegel, Esq.
Nassau/Suffolk Law Services,Hauppauge, NY

3. Microsurgery Panel
Kalmon Post, MD
Chairman, Dept. of Neurological Surgery, Mt.Sinai Medical Center, New York, NY

J. Thomas Roland, MD
Ass't Professor of Otolaryngology, NYU Medical Center, New York, NY

4. Managing Pain: Mind/Body Healing
Ingrid Bacci, PhD
Craniosacral Therapist, Alexander Technique, Briarcliff Manor, NY

5. Plastic Surgery & Anastomosis Surgery
Paul E. Hammerschlag, MD
Clinical Ass't Professor, NYU Medical Center, New York, NY

Roger L. Simpson, MD, FACS
Director, Facial Paralysis Center,Long Island Plastic Surgical Group, Garden City, NY

Berish Strauch, MD
Chief, Plastic Surgery, Montefiore Medical Center, Bronx, NY

6. Vestibular Recovery & Rehab.
David Malamut, PT
Rusk Institute, NYU Medical Center, New York, NY

Eric Smouha, MD
Director, Neurotology & Otology,
University Medical Center SUNY Stony Brook, NY

10:00 - 11:00 AM Concurrent Workshops, session II

1. Headaches: Small Problem or Incapacitating Symptom
Joseph Feghali, MD, FACS
Clinical Associate Professor of Otolaryngology and Neurosurgery,
Beth Israel Medical Center, Montefiore Medical Center, Bronx, NY

2. Family Members Only
Discussion led by Family Therapist. Speaker TBA

3. Movement Therapy
Linni Deihl, MEd, ADTR
Private Psychotherapy Practice/Dance Movement Therapist, Quogue, NY

4. Neuromuscular Retraining for Facial Paralysis
Jacqueline Diels, OTR
Neuromuscular Retraining Clinic, University of Wisconsin, Madison, WI

5. Radiosurgery Panel
Ehud Arbit, MD
Director, Division of Neurosurgery, Staten Island University Hospital, S.I., NY

Bernadine Donahue, MD
Associate Professor of Radiation Oncology, NYU Medical Center, New York, NY

John Golfinos, MD
Assistant Professor, Department of Neurosurgery, NYU Medical Center, New York, NY

6. Rubenfeld Synergy Method: Art as Recovery, A Case Study
Martita Goshen
Private Practice/Rubenfeld Synergist, Sea Cliff, NY

11:00 - 11:30 PM Stretch and Coffee Break

11:30 - 12:30 PM Concurrent Workshops, session III

1. Fatigue and Reduced Stamina
Roberta Calhoun, ACSW
The Brain Tumor Society, Boston, MA

2. Healing through Art: Survivors Art Foundation
Candyce Brokaw
Founder/Executive Director, SAF, Westhampton, NY

Ellie Ehrlich, A TR-BC
President, Connecticut Art Therapy Association

Heah Choi Dance Troupe

Suzanne Stutman, PhD
Professor, English, American and Women's Studies, Penn State University, State College, PA

3. NFII Panel
James Pacholka, MD
General Surgeon, St. Vincent's Hospital, New York, NY

Samuel Selesnick, MD
Vice Chairman, Department of Otorhinolaryngology
PresbyterianHospital/Cornell University, New York, NY

4. Nutrition
Marion Costallos, RD
Nutritionist, Mt. Sinai Medical Center, New York, NY

Sasha Auerko Story, RD, CDN
Holistic Nutritional Consultant, Long Beach, NY

5. Surgical Care of the Eye
Richard Palu, MD
Ophthalmic Surgeon, NYU Medical Center, New York, NY

6. Tai Chi & Chi Gong for Balance
Christopher Sisinni, DC
Tai Chi and Martial Arts Instructor, Second Degree
Black Belt, East Meadow, NY

1:00 - 2:30 PM Lunch

Susan Bailey: African Dancing and Drumming Performance
Bojana Blagojevic: Poetry Reading

2:45 - 3:45 PM Plenary Session: Open Forum for Patient Questions

Samuel Selesnick, MD,
Joseph Feghali, MD,
J. Thomas Roland, MD
John Golfinos, MD
Kalmon Post, MD

4:00 - 5:00 PM Concurrent Workshops, session IV

1. Computer as Patient Tool
Samantha Scollamiero
Founder, The Brain Trust On-Line Information and Support, Cambridge, MA

Dina Q Goldin, PhD
Founder and Editor, the Acoustic Neuroma Archive, http://www.ANarchive.org

2. Shiatsu
Ohashi Institute, New York, NY

3. Memory and Cognitive Issues
Deborah Hannah, RN, MSN
Doctoral Candidate, Research: Memory and Brain Injury/Tumors,
Boston College, School of Graduate Nursing, Boston, MA

Barbara Kristaponis,
President, ANA/NY

4. Patient Support
Ann Marie Antener,
Executive Director, ANANY

4. CONFERENCE REGISTRATION

Fee

The registration fee is $35 and includes all program materials, continental breakfast, and lunch. Please make check payable to ANANY. Space is limited, register today.

There are a limited number of scholarships available. If you are unable attend this conference due to financial hardship, please call Barbara at 212- 724-4546.

Location

This conference will be held at Hofstra University, Hempstead, NY.

Cancellation

The registration fee will be refunded (minus $15 fee) if written notice is postmarked by August 8, 1999. No refunds will be given after this date.

Accommodations

Hofstra University is 100 percent program accessible to persons with disabilities.

For Friday night accommodations, the Marriott Hotel at Nassau Coliseum is nearby, 101 James Doolittle Boulevard, Uniondale, NY. Telephone: 516-794-3800.

For Friday and Saturday night accommodations, call Garden City Hotel, 45 Seventh Street, Garden City, NY, 515-747-3000 or Coliseum Motor Inn, 1650 Hempstead Turnpike, East Meadow, NY, 800-540-5050.

Directions to Hofstra University

From Southern State Parkway, take Meadowbrook Parkway North (Exit 22) to Hempstead Turnpike (Route 24) West (Exit M4W). Travel west to the main entrance of the Hofstra South Campus which will be approximately 1 mile on the left. Follow signs for ANANY Conference.

From Northern State Parkway, take Meadowbrook Parkway South (Exit 31A) to Hempstead Turnpike (Route 24) West (Exit M4W). Travel west to the main entrance of the Hofstra South Campus which will be approximately 1 mile on the left. Follow signs for ANANY Conference.

From Pennsylvania Station (34th Street & Seventh Ave.), take the Long Island Railroad (LIRR) to the Hempstead station where ANANY vans will be available at 8:03 and 9:03 for the 1.5 mile ride to Hofstra South Campus. (Taxis are also available at this station.) Trains leave Penn Station at 6:12, 7:12, 8:12 AM, etc. and arrive at Hempstead at 7:03, 8:03, 9:03 AM, etc. The cost is $4.25 each way. For further information, call LIRR at 718-217-5477.

For people who would like to travel together or carpool, call Jackie at 516-432-5073.

Mail Registration and Payment to:

ANA/NY - Head for Health Conference
Box 877 Planetarium Station, New York, NY 10024
Or call: 212-724-4546 516-826-2152
E-mail: amateach@aol.com

Dates to Remember:

August 4th         Final Day for Scholarship Registration
August 8th         Cancellation Notice Deadline
August 14th       Conference

5. REGISTRATION FORM

Name:________________________________________________________

Title:_________________________________________________________

Organization:__________________________________________________

Phone: Day:_______________________ Evening:____________________

FAX:_______________________ E-MAIL:_________________________

Mailing Address:________________________________________________

City:_______________________________ State:_____ Zip:_____________

Please check:

_____ Yes, I need transportation from LIRR Hempstead Station to Hofstra.

_____ Yes, I require a Signer.

Dietary Requirements or Special Accommodations:

________________________________________________________________

Seminar Sessions:

Select one workshop for each session by checking the appropriate box

8:45-9:45 AM

____ History AN Surgery ____Know Your Rights ____ Microsurgery
____ Managing Pain ____Plastic Surgery ____ Vestibular Recovery

10:00-11:00 AM

____ Headaches ____ Rubenfeld Synergy Method ____ Movement Therapy
____ Radiosurgery ____ Neuromuscular Retraining ____ Family Members

11:30-12:30 PM

____ Fatigue/Stamina ____ Healing through Art ____ NFII Panel
____ Nutrition ____ Surgical Care of the Eye ____ Tai Chi & Chi Gong

4:00-5:00 PM

_____ Computers _____ Shiatsu
_____ Memory & Cognitive Issues _____ Patient Support

Payment:

_____ My check/money order for $___________is enclosed ($35 per person).

Tax deductible contribution to support someone who cannot afford this fee $_____ .

Mail to:

ANA/NY- Head for Health Conference
Box 877 Planetarium Station
New York, NY 10024-0877

Please make check payable to ANA/NY.

ANA/NY does not endorse any commercial product, physician, mocrosurgeon, or radiosurgeon, surgical, or radiosurgical procedure, medical institution or its staff.

Last Edited: Wednesday, October 30, 2002